I’m so excited to be posting my very first raw interview since starting my blog. I interviewed a 52-year-old woman named Deardra living in Edmonton, Alberta who spoke about her experience with Hypermobile Ehlers-Danlos Syndrome. Deardra offers great advice to young people who are recently diagnosed with Ehlers-Danlos Syndrome and how to be supportive if you know someone who has it.
- 0:27 – Introducing Deardra, 52, mother of three sons
- 1:18 – Deardra’s Disability: Hypermobile Ehlers-Danlos Syndrome
- 4:17 – Discovering Her Disability Late In The Game
- 6:56 – Deardra’s Challenges: Fatigue
- 8:13 – Deardra’s Lesson: Learning to Be Compassionate With Your Body
- 9:27 – Deardra’s Lesson: Taking Each Day As It Comes & Having A Good Support System
- 10:52 – Deardra’s Challenges: The Struggle To Be Taken Seriously
- 12:41 – Deardra’s Recommendation: Understand Invisible Versus Visible Disabilities
- 13:58 – Deardra’s Recommendation: Read How To Be Sick by Toni Bernhard
- 16:19 – Deardra’s Lesson: You’re Still The Same Person
- 17:00 – Deardra’s Recommendation: Find Supportive Medical Professionals
- 18:30 – Deardra’s Recommendation: Be Organized With Your Medical Records
- 19:44 – Final Remarks
4 thoughts on “Deardra, 52, Hypermobile Ehlers-Danlos Syndrome [Audio]”
Thanks for sharing this awesome interview! Look forward to seeing more posts!
Thank you for the comment, Nora! Glad to hear you’re enjoying my blog 🙂
I absolutely love your blog! Where can I sign up to be interviewed?
Hi Eleanor, thank you so much! If you send me an e-mail at firstname.lastname@example.org, we can start discussing logistics. 🙂