Deardra, 52, Hypermobile Ehlers-Danlos Syndrome [Audio]

I’m so excited to be posting my very first raw interview since starting my blog. I interviewed a 52-year-old woman named Deardra living in Edmonton, Alberta who spoke about her experience with Hypermobile Ehlers-Danlos Syndrome. Deardra offers great advice to young people who are recently diagnosed with Ehlers-Danlos Syndrome and how to be supportive if you know someone who has it.



  • 0:27 – Introducing Deardra, 52, mother of three sons
  • 1:18 – Deardra’s Disability: Hypermobile Ehlers-Danlos Syndrome
  • 4:17 – Discovering Her Disability Late In The Game
  • 6:56 – Deardra’s Challenges: Fatigue
  • 8:13 – Deardra’s Lesson: Learning to Be Compassionate With Your Body
  • 9:27 – Deardra’s Lesson: Taking Each Day As It Comes & Having A Good Support System
  • 10:52 – Deardra’s Challenges: The Struggle To Be Taken Seriously
  • 12:41 – Deardra’s Recommendation: Understand Invisible Versus Visible Disabilities
  • 13:58 – Deardra’s Recommendation: Read How To Be Sick by Toni Bernhard
  • 16:19 – Deardra’s Lesson: You’re Still The Same Person
  • 17:00 – Deardra’s Recommendation: Find Supportive Medical Professionals
  • 18:30 – Deardra’s Recommendation: Be Organized With Your Medical Records
  • 19:44 – Final Remarks

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