AUDIO: Deardra, 52, Hypermobile Ehlers-Danlos Syndrome

I’m so excited to be posting my very first raw interview since starting my blog. I interviewed a 52-year-old woman named Deardra living in Edmonton, Alberta who spoke about her experience with Hypermobile Ehlers-Danlos Syndrome. Deardra offers great advice to young people who are recently diagnosed with Ehlers-Danlos Syndrome and how to be supportive if you know someone who has it.

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Timestamps

0:27 – Deardra, 52, mother of three sons | 1:18 – Introducing Deardra’s Disability: Hypermobile Ehlers-Danlos Syndrome | 4:17 – Discovering Her Disability Late In The Game | 6:56 – Deardra’s Challenges: Fatigue | 8:13 – Deardra’s Lesson: Learning to Be Compassionate With Your Body | 9:27 – Deardra’s Lesson: Taking Each Day As It Comes & Having A Good Support System | 10:52 – Deardra’s Challenges: The Struggle To Be Taken Seriously | 12:41 – Recommendation To Those Without: Understand Invisible Versus Visible Disabilities | 13:58 – Recommendation To Those Without: Read How To Be Sick by Toni Bernhard | 16:19 – Advice for People Who Just Discovered They Have It: You’re Still The Same Person | 17:00 – Advice for People Who Just Discovered They Have It: Find Supportive Medical Professionals | 18:30 – Advice for People Who Just Discovered They Have It: Be Organized With Your Medical Records | 19:44 – Final Remarks

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